still suffering
Hi all!
I could do with some input please....
I have had gout for about 2 years.
I am on Allo (300mg)daily. and Indomethacin 50mg)(Which I stop when
an attack clears up).
But still have attacks (having one at the moment)
I drink a lot of water........
Is their anything further I can do to prevent these constant attacks?
Should I increase any dosages?
(I can hardly walk at the moment)
Kind Regards
Martin
Allo will not make gout attacks go away immediately. It will
gradually get better over about a six month period with more in the
first two months, some in the second two months and then few if any
in the last two months.
Culcchichine will help with the attack and I find celebrex works
wonders on my attacks. One of each at bed time and one of each about
9 in themorning. After I started allo, the attacks were stopped
completely within 24 hours with a combination of culcichine and
celebrex. there has been some recent stuff about celebrex and heart
disease but if you only have to take it a few days a month it should
not be a problem.
Celebrex did absolutely nothing for me. Only the old and faithful
2-hit combo seemed to work in any of my instances.
--Celebrex didn't help me at all either, i'm on 600mg of Allo and
take 40mg of Colchicine daily spread out through the day. My Gout has
progressed so bad I'm out of work now for probably forever. The only
thing that allows me any relief now is 150mg of Avinza(morphine
sulfate)daily and that doesn't last long. They're correct though,
Allo will take sometime to help clear up your current attack. You
should probably get back to the Doc to see if he or she is willing to
provide you with the Colchicine to help it. Also check your diet,
even if you've done a good job of eliminating high purine foods,
maybe you're eating something on the list that just might be a
trigger for you. In my case eating peas and excessive amounts of
chicken can make my Gout get worse. Good Luck,
Mike
How long have you been on 600 mg of allo?
And I assume you have your water intake way up?
Good luck and keep us informed.
The allo should eventually stop your attacks.
I do understand your pain, I was immobalized for more than three
months. Oh well, Columbus had to be carried from place to place on a
special wooden platform built just for him so he would not have to
move because he had intense gout in all his joints.
-I've been on 600mg for 1 1/2 years now, I drink so much water now I
feel like a fish. I didn't know that about Columbus, i learn
something everyday. I almost wouldn't wish this Gout thing on anyone.
Over the last several years I had acute gout attacks, two of which sent me to emergency. In both cases I was given a shot (can't find the paperwork which had the name) but it was used in the same way that ACTH (brain hormone used to be used in the old days - but not now used any longer). In both cases the pain and symptoms cleared up within a half a day.
If I were in your predicament I would go immediately to a hospital emergency ward.
If you are taking 40mg daily of Colchicine, you'd be dead. That's enough to kill two elephants.
You also did not mention having taken any uricosurics - surely your doctor would know about such meds.
In a message dated 10/18/2004 4:23:55 AM Pacific Daylight Time, bhuddah@... writes:
-I've been on 600mg for 1 1/2 years now, I drink so much water now I
feel like a fish. I didn't know that about Columbus, i learn
something everyday. I almost wouldn't wish this Gout thing on anyone.
that shot must be voltaran (anti inflamatory ) to reduce inflamation .I have had it before at an emergency yes it help but not sure of the long term side effects . always take your allupurinol and stress is the main contributing factors that trigger gout attack .so reduce stress and you'll be fine again .
Hi Mike,
It seems that we are in a similar situation with Gout. I got it at age 25, and am now 42. I have permanent damage to my lower joints, and also have to take painkillers on a chronic basis. I take Allo and Probenecid for the uric acid. I don't know where you are, but I think 40mg of Colchicine might be fatal. Here you usually take .1mg or .2 mg at a time. It sounds like you are taking about 400 times the usual dose here in the U.S. Even low doses make me very ill. Taking the Allo reduces the attack frequency with me, but does not eliminate them. I have taken a variety of Cox-1 and Cox-2 inhibitors without much success. I still work, but use a cane or sometimes other assistance.
Regards
Marty
Mike <bhuddah@...
--Celebrex didn't help me at all either, i'm on 600mg of Allo and
take 40mg of Colchicine daily spread out through the day. My Gout has
progressed so bad I'm out of work now for probably forever. The only
thing that allows me any relief now is 150mg of Avinza(morphine
sulfate)daily and that doesn't last long. They're correct though,
Allo will take sometime to help clear up your current attack. You
should probably get back to the Doc to see if he or she is willing to
provide you with the Colchicine to help it. Also check your diet,
even if you've done a good job of eliminating high purine foods,
maybe you're eating something on the list that just might be a
trigger for you. In my case eating peas and excessive amounts of
chicken can make my Gout get worse. Good Luck,
Mike
Possibly, but I recall that it was a two syllable word, starting with either a D or an M. The hospital won't divulge it. ACTH used to work like a charm, but it's considered too dangerous nowadays.
In a message dated 10/18/2004 12:23:32 PM Pacific Daylight Time, nashahab@... writes:
that shot must be voltaran (anti inflamatory ) to reduce inflamation .I have had it before at an emergency yes it help but not sure of the long term side effects . always take your allupurinol and stress is the main contributing factors that trigger gout attack .so reduce stress and you'll be fine again .
The following is my opinion and should be treated that way. If you
have been on allpp[urinol at 600 mg per day for 1.5 years I believe
that you are probably suffering from something else in addition to
gout. Are you rhumatoid? Meaning, are you also suffering from
Rhumatiod Arthritis?
600 mg of allopurinol for a year and a half should have eliminated
your uric acid excess by now. If you are very overweight there might
still be reservoirs of uric acid that are making their way out of
your system but on 600 mg of allopurinol, you are not making uric
acid any more. Have you been to a rumatologist?
- Actually you can safely take up to 60mg of Colchicine a day for
severe Gout up until you get that case of the runs that is going to
start then you need to back off to prevent dehydration and excessive
loss of needed minerals for your bodies chemistry. I utilize just
about all the meds that are available for the treatment of severe
topheaceous Gout. I've been to the emergancy room before for the pain
but because I take Avinza daily they can't really give me anymore for
the pain, the opiates are enough for my organs to process.
---yes i see a Rhumetologist regurarly, as for my weight I've lost 70
lbs since in the last 10 months, I did calculate my colchicine useage
wrong though, i must apologize to the group for my math skills
lately, it should have been 4.0 mg not 40.mg No I don't have RA but
my docs believe I may be suffering from Luous, which actually doesn't
mean anything but giving my suffering a name to call it. My Rhumy has
pointed out that in severe cases of gout such as mine, research has
shown that your Uric acid levels don't mean squat when it comes to
suffering from symptoms. I had a hard time believing that but
according to my constant blood work it must have some truth to it.
Have heart and hang in there.
A loss of 70 pounds is almost half of a normal man's body weight and
almost all of that tisue is adipose tissue, that is fat cells. When
you allow yourself to get fat, literally when you allow your system
to have a large excess of fatty tissue, that tissue can and will
store uric acid, in the form of actual uric acid, not mono sodium
urate. Pure uric acid is not a problem in the body. It is relatively
harmless and will not cause problems as long as your weight is
stable. As you lose that fat, the uric acid that is stored there
will dump into your aqueous system, your blood stream, from the
adipose tissue, and as the uric acid is dumped in the system, you
will have gout attacks.
I would not recommend that you stop losing the weight forever,
however, I would strongly recommend that you slow down considerably
on the amount of weight that you are losing in a specific unit of
time. The allopurinol is keeping you from building more uric acid but
as long as you have exceess fat and continue to loose that fat, you
will keep dumping that excess uric acid onto your aqueous system,
that is, onto or into your blood.
Allopurinol has absolutely no effect, what-so-ever, on uric acid that
you already have stored in your body. If it has already been made and
stored in your body in the fat tissue, then the only way you are
going to get rid of it is through the kidney and that means with
water drinking.
Let me repeat that so everyone on here can understand it.
Allopurinol has no effect on uric acid that is already in your body.
None, nada, zinch, non-reactive and none at all. It does not do
anything about uric acid that is already in your system.
The only thing that allopurinol does is that it stops the formation
of new uric acid.
Now, if you will stabelize your weight, at for example, the current
level of wight, and allow your system to stabelize at that weight for
three months, your gout will completely go away. Moreover, if you
will then re-start your weight loss program but lose it at 1/2 to 1/4
your former weight loss pace, you will be able to lose the weight
without suffering from your gout attacks.
To summarize,
1. Stop the weight loss until gout symptoms go away and that should
take about two months before you notice a significant difference.
2. Maintain your current weight and hold it steady for at least 6
months after gout has disappeared.
3. When clear from gout for 6 months, resume your weight loss but at
a much reduced rate, say 1/4 of your former rate.
The problem you are having is pure chemistry and many physicians
don't understand it. Rumatologists included. Moreover, increasing
your allopurinol level will not improve the situation at all. I
seriously doubt that you need more than 300 mg per day to completely
block uric acid formation. Your problem is all the excess uric acid
that you have built up over the years and stored in your fat tissue.
I'll get off my soap box now and say good night, and I do hope you
find a way to relief soon.
Now that is a very interesting bit of information Walter, thank you
for that. I'll definately think about what you just said and
seriously give it a try. it can't hurt!!
And Christopher Columbus, Ben Franklin, Thomas Jefferson, Socraties-
it has been suggested that his hemlock ingestion -that was taken so
willingly-was partly to escape the ravages of gout-Some have claimed
that Der Feuer suffered from it although he worked very hard to
conceal it, and of course Arnold and me.
I wonder how many famous people have suffered gout (even present day) Alan donald the famous south african cricketer ( All those in USA trust me he is famous) suffers with gout.
regards
Tony
Allan Donald sure is a famous figure. Atleast with all the cricket
lovers who fondly call him "white lightening". Anyway are you sure he
has got gout? For how long? I opine it must be recent, because bowling
as he used to do with gout is virtually impossible!
On Sun, 24 Oct 2004 11:09:41 EDT, tonyharrisuk@...
Allan donald definitely had gout and he missed a test matches due to the condition. It was towards the end of his test career when he was about 33 years old
http://static.highbeam.com/s/sportsargusbirminghamengland/january152000/cricketwarwicksondonaldsagendasports/
http://www.telegraph.co.uk/htmlContent.jhtml?html=/archive/2000/01/16/sctest16.html
Read the above links for confirmation
regards
Tony
No wonder why he looked so out of sorts at the twilight of his career.
If a person as fit and agile (remember he trained as a gymnast early
on) as Donald can end up with gout, then anybody can!
On Mon, 25 Oct 2004 01:15:40 EDT, tonyharrisuk@...
http://static.highbeam.com/s/sportsargusbirminghamengland/january152000/cricketw\
arwicksondonaldsagendasports/
http://www.telegraph.co.uk/htmlContent.jhtml?html=/archive/2000/01/16/sctest16.h\
tml